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[1755] - Feasibility of Online Registration of
Physical Functioning by RA Patients in the Out Patient
Clinic.
Rosanne
Koevoets 1 ,N.A. de Glas1,I Speyer2,A.A.
Schouffour1,T.W.J. Huizinga1,Thea PM Vliet
Vlieland, PT, MD, PhD3,Cornelia F Allaart, MD,
PhD3. 1Leiden University Medical Centre,
Leiden, the Netherlands,2Bronovo hospital, The
Hague,3Rheumatology, Leiden University Medical Centre,
Leiden, the Netherlands, Leiden
Background: Monitoring functional ability is important to
assess efficacy of treatment in rheumatoid arthritis (RA), however
implementation of routine assessment of functional ability in daily
practice remains difficult.
Purpose: To assess the feasibility of and patients' opinion
about autonomic online health assessment questionnaire (HAQ)
registrations by RA patients in our out patient clinic
Methods: RA patients visiting the out patient department
were given an oral instruction and asked to fill in a computerized
HAQ in METEOR, a free web based program designed for monitoring
both functional ability and disease activity. The time needed to
fill in the HAQ and any problems arising were registered. Next,
patients answered questions on computer access, the usefulness of
the HAQ and the METEOR program. Answers were filled in on a 5 point
Likert scale with a high score representing a positive answer and a
low score a negative one.
Results: Of 111 consecutive patients, 92 agreed to
participate, and 78 patients completed the whole evaluation, while
14 patients stopped early because of time constraints.
Seventy-seven percent of the participants were female, and the
average age was 58.4 years (range 25-78). Mean (SD) disease
duration was 10.4 (8.7) years and mean (SD) HAQ score at the time
of assessment was 1.01 (0.72). Of all participants, 84% had
personal computer access and 73% reported frequent (daily or
weekly) computer use. The mean time patients needed to fill in
their own HAQ was 6 minutes, which 99% of patients reported as
reasonable or good. Patients felt they had not needed much
assistance when filling in the HAQ, although the investigator had
noted that some assistance (mainly concerning technical computer
problems) was needed in 78% of all patients. Average scores on
questionnaire items are presented in table 1. Ninety-five percent
of patients said they would be willing to fill in the computerized
HAQ at the next visit and 83% was prepared to come to the hospital
earlier to fill in the HAQ there, 73% of patients would like the
option of filling in the HAQ at home. Twenty percent of patients
felt there were missing subjects in the HAQ, in particular
work-related activities, social activities and sports, as well as
registration of fatigue and psychological problems. Ninety-four
percent reported that the subjects included in the HAQ were all
relevant. According to patients discussing problems in daily
functioning is important, however it is not always part of the out
patients visit to the rheumatologist (table1).
Table 1 Results of patients survey questions.
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RA患者门诊在线完成躯体功能评估的可行性
Koevoets R, et al. ACR 2010. Present No:
1755.
背景: 监测躯体功能状况对于评估RA疗效非常重要，但是在日常诊疗工作中常规评估躯体功能状况较为困难。
目的: 评估RA患者门诊在线填写健康评估问卷（HAQ）的可行性及患者对此的看法。
方法: 口头指导并要求就诊于门诊的RA患者在电脑上填写METEOR中的HAQ，METEOR是一个检测功能状况和疾病活动度的网站。记录填写HAQ的时间及其中的问题。之后，患者回答有关电脑使用情况、HAQ和METEOR有效性的问题。答案填写在5点Likert量表上，高分代表肯定回答，低分代表否定回答。
结果: 在111例患者中，92例同意参加研究，78例完成整个评估，14例因时间关系早期退出。77%参与者为女性，平均58.4岁（25-78岁）。病程为10.4 ±
8.7年，HAQ评分为1.01 ± 0.72。在所有参与者中，84%有个人电脑，73%经常使用电脑（每天或每周）。完成HAQ的平均时间为6分钟，其中99%认为一般或较好。患者认为他们在填写HAQ时不需要太多帮助，但研究者发现78%患者需要帮助（主要是有关电脑技术问题）。表1列出了问卷项目的平均得分。95%患者认为他们在下次就诊时愿意填写电脑上的HAQ，
83%打算早点来医院以便填写HAQ，
73%愿意在家填写HAQ。20%患者认为HAQ中有遗漏的项目，特别是与工作相关的活动、社会活动、体育及疲劳与精神问题。94%患者认为HAQ中的项目都具相关性。虽然患者讨论日常功能问题非常重要，但在门诊并未常规进行。
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